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Osteoporosis meds and mast cell activation syndrome
Osteoporosis & Bone Health | Last Active: Jan 17 8:25am | Replies (7)Comment receiving replies
@jklotzkin I just tried 3 days of Tymlos injections and had increasingly severe mast cell reactions so my hematologist said to stop it. I'm not sure if Forteo will be different enough for me to tolerate it. Have you done well with it so far? Thank you.
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@nytl I really appreciate you sharing. I have not started on the Forteo yet due to my doctor wanting my MCAS more stabilized before trying. The only reason I am even considering it is that it supposedly leaves your body within 24 hours. But I’m also concerned that following the Forteo I would have to be on medication. Anyway I’m sorry to hear that it didn’t work for you. I wish you well!