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Alpelisib (Piqray): for anyone starting this medication

Breast Cancer | Last Active: Jan 20 4:30pm | Replies (10)
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Profile picture for nwhmbc @nwhmbc

Hi.
Thanks you for checking in. The injection was fine. Other than a little tenderness in the area of the injection I feel good. I have my second one on the 22nd. My doctor delayed the start of PIQRAY as my glucose was high. The plan is to start me on a 7 day med and then start PIQRAY. I’m having a spine and skull MRI on Saturday and they want to see the results of that. I fell like I need an Excel spreadsheet to keep track of it all. How are you doing? Did you start the PIQRAY? How are the side effects? Take care.

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Replies to "Hi. Thanks you for checking in. The injection was fine. Other than a little tenderness in..."
Lisa, Volunteer Mentor | @lls8000 | Jan 20 4:30pm

@nwhmbc, I know how you feel! I do keep a timeline of my scans and any hic-ups in excel. I keep a running list of side effects in the notes section of my phone, so it's easy to access. I just don't have the brain power to remember it all when I'm asked. It's been helpful.
Have you received the MRI results yet, or spoken with your doctor about the results?

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