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Trying To get Answers About GCA

Autoimmune Diseases | Last Active: 15 hours ago | Replies (14)

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Profile picture for seniormed @seniormed

Better to stay on high dose prednisone and not taper so quickly.
Know your numbers for ESR and CRP. Ask for a lab order for IL-6
level and hepatitis and TB screens which the rheumatologist would order
before Actemra. You could contact your prescription plan and see
if it covered. The manufacturer may have a program to help pay if
you qualify for assistance. I think most rheums keep the dose at 60 until
you see improvement.

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Replies to "Better to stay on high dose prednisone and not taper so quickly. Know your numbers for..."

@seniormed On 05.29.25 my ESR was 7mm/hr. On 12.-3.25 my ESR was 2mm/hr
On 12.03.25 my ESR was 2mm/hr

On 05.29.25 my CRP was 2.52mg/L
On 12.03.25 my CRP was .07mg/L

In both instances the numbers have decreased. What does this tell me? Thanks.