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Hemiplegic migraine

Headache & Migraine | Last Active: 2 days ago | Replies (53)

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Profile picture for hemichill @hemichill

I am 33 and started having Hemiplegic migraines in 2017. They are non familial and have completely taken over my life. I’ve take every med possible. I do Botox to help severity but not amount. Recently during a HP migraine attack, my body started violently thrashing. Arms just flailing and no control. I was conscious, but unable to speak (aphasia) or see very well. It lasted about an hour before administered benzodiazepine in ambulance, Dr. is calling it Atypical Migraine. And if I feel it coming on I try to take lorazepam quick enough or my parents have to hold me down until it kicks in. HP migraines or not, has anyone had their migraines turn in to something like this out of nowhere? I have been diagnosed with epilepsy since 13, but they are controlled. Nor would a person be awake for an hour during a seizure. I’m just looking for people going through things like me. It can be very lonely. I am seeing a line up of doctors.

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Replies to "I am 33 and started having Hemiplegic migraines in 2017. They are non familial and have..."

Hi @hemichill, and welcome to Mayo Clinic Connect. I moved your post here where others were already talking about hemiplegic (HP) migraine. I did this so you'd have a group talking about similar topics who might discuss your HP migraines and the violent body thrashing you experienced recently during an HP migraine attack with the inability to speak for an hour.

Hoping others here in this chat can talk about whether they've had their migraines turn into a scenario like this before, such as @eastbaydave @loupy @aggie82 @sandra777111 and others. I'd also like you to meet @hopeful33250.

Have your doctors suggested any potential preventative options for the violent body thrashing during an HP attack? Did you have any injuries from this incident?