I decided a couple months ago to give up and stop going to any doctors. The gaslighting from specialists was destroying my mental health and doing nothing for my physical health or pain. It lasted less than 2 months. My hands became crippled starting with trigger finger and then they turned to claws. An MRI was already scheduled and Seronegative RA was the diagnosis. I haven’t seen anyone about that diagnosis, only spoke to the Rheumatologist on the phone to start meds.
I saw an Orthopedic surgeon which was the scheduled follow up on the MRI and she said I have a perfect storm going on with synovial fluid, some joint damage AND severe carpal tunnel from the swelling in my hand and carpal tunnel. She is going to go in to release the trigger finger and do the Carpal tunnel release. She is concerned my right middle finger will never be able to fully bend again.
She’s the first doctor in over a year who has been helpful. I couldn’t thank her enough.
Terri
@rocksology
My analogy for having inflammatory arthritis and PMR was like a hurricane. If I took enough prednisone, I could mostly stay within the eye of the storm while the storm swirled all around me. I had to hunker down when prednisone introduced some additional swirls. Prednisone wasn't quite as bad as the hurricane but close.
My doctors were more like my lifeline. They prevented me from being swept away so I would recommend staying in touch with them. My doctors weren't in the hurricane but they managed to pull me out of it.