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Profile picture for mikewdby @mikewdby

Personally during a normal CT scan for a hernia in June ‘23, I was told that I have a cyst on my pancreas. An EUS showed nothing suspicious and my CA-19 numbers were 15 and 16. I am being monitored @ Mayo Rochester, MN every 6 months and now every 9 months - with no changes.

Currently I have no symptoms.

My respectful ask to you all….especially for those diagnosed with Stage 1 or Stage 2,…

1). what symptoms did you have before being diagnosed?

2). Has anyone had the ‘new’ blood test that supposedly will replace the CA-19 test as it supposedly is more accurate?

3). Does anyone know if a person can request it, especially at Mayo?

Thank you.

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Replies to "Personally during a normal CT scan for a hernia in June ‘23, I was told that..."

@mikewdby, I believe you are referring to the early detection blood test developed by Ajay Goel, Ph.D., of City of Hope Duarte Cancer Center in California. Read more here:
- Blood Test Accurately Detects Early-Stage Pancreatic Cancer https://www.cancer.gov/news-events/cancer-currents-blog/2024/liquid-biopsy-detects-pancreatic-cancer

I can help with you question 3).

The High-Risk Pancreas Clinic within the Division of Gastroenterology and Hepatology at Mayo Clinic in Rochester, Minnesota, serves as the hub for pancreas cancer screening in people at high risk of developing pancreatic cancer. Read more here:
- Pancreatic Cancer Early Detection Research Program https://www.mayo.edu/research/centers-programs/pancreatic-cancer-early-detection-research-program/overview

I would ask your doctor at Mayo Clinic about the blood test.

@mikewdby

I can answer #1. I was diagnosed with stage 1. My pee was getting brighter so I went in to an urgent care (as I was traveling). They did blood tests that indicated high levels of bilirubin. Before I could get into a urologist, my skin began turning yellow so I went into the ER. There I had an ERCP that (on the second try) resulted in the diagnosis.