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PC treatment: Prostatectomy or Proton Beam Therapy

Prostate Cancer | Last Active: Jan 22 11:40am | Replies (47)

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Profile picture for retireditguy @retireditguy

I'm not a medical professional and I have no idea which treatment will be best for you. Picking a treatment path can be a tough decision. That said, what follows isn't a recommendation, but rather just my personal experience. In 6/2024 I had surgery at age 70. No incontinence (other than some minor releases until I figured out the new normal), ED gone at 15 months, urination actually better than before surgery. My biopsy results were 3+4=7, but pathology after removal found both Cribriform and IDC (not good, but at least I have that information going forward). I attribute my excellent outcome to a very experienced surgeon at a CCOE, a good penile rehab program, and some good luck. It is really important that you're comfortable with your decision of whichever treatment plan you choose so you don't have any regrets later on since it's impossible to know how things will turn out. Don't hesitate to ask questions, but also be aware you can click on my name and see my journey by reviewing my past comments in chronological order. Best wishes.

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Replies to "I'm not a medical professional and I have no idea which treatment will be best for..."

@retireditguy
Hello - you are the first to mention "penile rehab." You say your incontinence was OK and restored fairly early. Was that due to what your term "penile rehab", or are you meaning "sexual/erectile" penile rehab? I am not aware that it exists. I went for 8 weeks of "Pelvic Floor Physical Therapy" (PFPT) to help with urinary incontinence, but the therapist did nothing for sexual erectile function. Literally up to the day before my surgery last April, as a 70 year old man, I was fully capable of sexual erectile function, but I have been "dead in the water" down there for 10 months now post-op. If there is a penile rehab therapy or program, please describe it in detail, including how soon after surgery you started that therapy...I want to know of the 15 months you were struggling with ED, how many months prior to the 15th month, you started your penile therapy (in other words: therapy was all 15 months, or just the last 3-4 months of that 15 month period?). Thank you in advance for your reply.