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Do I have to go to Hospice to get help with cancer pain?
Gynecologic Cancers | Last Active: Jan 29 10:01pm | Replies (23)Comment receiving replies
@coco46 I did have a talk with my Palliative care provider she told me if I want the help I never for my level of pain management I no longer receive Chemo treatment and just let Hospice focus on my Comfortability. I don't want to stop my Chemo my Cancer is responding good to my Chemo it's just pain I can't live with.The pain keeps me from sitting in a chair walking is a struggle and when I need to get to my appointments or anywhere else I have to pack the backseat with pillows and lay down till I get there this is no way to live.My 4yr old said to me just broke my heart mama I pray God fix you so we can play together again oh my God. I'm sorry I have to take a break from this thank you though😭
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@gloria52
I hate to ask this, but does your oncologist agree that your current chemo is working? If it really is working, one would hope that it will reduce the pain at some point.
I'm currently on my 7th type of chemo, but Doxil (the form of doxorubicin aka Red Devil most commonly used in the US) plus bevacizumab/Avastin was #6. After my first dose of Doxil-Bev, my CA125 dropped from 200 to 39. But I could tell that my cancer was still growing rapidly, because I can feel it right under the surface of my belly. What Doxil-Bev did do was to stop the accumulation of fluid in my belly (aka ascites). I think the reduced CA125 had to do with that. So markers can be misleading.
Whether the chemo is working or not, maybe a good thing to focus on would be preparing your child and making sure she has mementos of your love for her. Hopefully there are people there who can advise you on how to talk to her in an age-appropriate way.