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Profile picture for roadtecguy @roadtecguy

I'm in the same boat. My 35th radiation treatment was on sept. 10th and the pain is showing no sign of letting up. My feeding tube came out in my sleep around the 8th but i was eating mostly soft food so I told them no sense putting one back in, so they agreed at the time, but now it hurts so much that I can't even gargle or move my tongue at all. Looking like another tube is in my near future since I'm having a hard time eating enough to maintain weight. I had to have my bottom teeth removed because they were worried about osteonecrosis, where if they have to pull it out after radiation, the bone will never heal, causing potentially deadly infection.

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Replies to "I'm in the same boat. My 35th radiation treatment was on sept. 10th and the pain..."

Hello @roadtecguy and welcome to Mayo Connect. Are you seeing your medical team regularly with these issues? I would reach out to them and ask for more help in managing pain and swallowing. Perhaps a PEG tube thru the stomach wall would allow your throat to rest and heal. I know a lot of people need physical therapy with a swallowing specialist. It doesn't sound normal to have so much pain at this point so follow up with the radiation team and see how they can help. Radiation damage is a continuous issue even years later for many of us.