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@dadcue I remember you from HealthUnlocked. I am Louisa 1840 on that wonderful forum. Yes, you are right in that each country would have its own protocols and ways of dealing with PMR. I would have to disagree with what you were told about your experiences not being pertinent to them as so many contributors are from the U.S A. surely?
I am in beautiful Tasmania, Australia and I am sure that we too have our different approaches? Surely we can all borrow and learn from each other ( I am speaking of them here and not YOU obviously. One of their major contributors can be a little too direct and I know she has alienated quite a few)
I so agree with your last para. I have a brother who lives in the UK (where I am from originally) who was diagnosed with PMR six months before me. He is just about at ZERO (and yes we're going to have a party, albeit via WhatsApp!). That doesn't mean that I will get to zero at the same time. As you say we are all different and there are many factors that would differentiate us. All the best and may 2026 be a really healthy year for you....
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@judith75
I remember someone identifying as Louisa but I'm not sure about 1840. I didn't know you were from Australia. Let me be the first to welcome you to the Mayo forum if you haven't been welcomed already.
I was in Sydney a few months ago. The small part of Australia I saw was beautiful. It was my first time being in Australia and I'm already thinking about going back to Australia for a second time. I spent most of the time in Sydney but I was also in Eden, Australia.
I didn't feel like the entire HealthUnlocked PMR forum felt my experience wasn't pertinent. It was mostly the one that was a little too direct. She seemed to think she was entitled to know everything and didn't filter some of her responses to me. It was just my personal experience with a couple of posters. I didn't mean to implicate the entire forum.
I remember people from Australia. LemonZest was one and I remember she was petitioning the government to receive a biologic. There are a few Australians on this forum too but I don't really care where people are from. I value anyone that wants to share their personal experiences.
I miss the HealthUnlocked forum and enjoyed sharing my personal experiences. I'm happy to be off prednisone for the last 5 years after 12 long years of taking prednisone daily. I would encourage everyone to keep trying to do the same.
Let me know when you and your brother get to zero. I will party with you!