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Cholangiocarcinoma - Mayo Clinic Rochester. Are there other patients?
Liver Cancer | Last Active: 12 hours ago | Replies (29)Comment receiving replies
Yes. I was diagnoced with intrhepatic cholangio carcinoma in October 2024. I was able to have surgery with Dr Patrick Starlinger even though Vanderbilt and Mount Sanai said I wouldn’t be able to. My surgery was on May 27th.
I had my last CT scan on 12/31/2025 and NED, but I have some nodules on one of my lungs that are being watched. My oncologist in Nashvile where I live has sceduled another. CT scan on March 2 to evaluate. I sent a message to Dr Conboy to ask if she could check it out and let me know what she thinks.
Replies to "Yes. I was diagnoced with intrhepatic cholangio carcinoma in October 2024. I was able to have..."
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@claudia0811, my message was meant for you. Congrats on the no evidence of disease (NED) status. It's important to monitor the lung nodules. As you likely know, lung nodules are very common and they may not be related to the cancer, but need to be monitored.