@enbalok
Im so very happy you are doing well and free from infection. I was very close to needing fulltime antibiotics, but like you my body finally came along after a year and feeling more like myself. It is great news for you and im sure glad i saw your msg, you have been a great support for me,
Dr. Denlinger, from MUSC was concerned in my case because i did not show signs of shortness of breathh, coughing, but had infection in bladder and lumg cavitary nodule that they couldnt rule out infections, cancerous, or fungal in nature. I was experiencing signs of rash systemic, lethargy, and very feeble. He said he knows it is slowly getting better making him ccertain of noncancerous. My scans were repeated every three months, i had four. drs. also agree with this plan. I certainly understand beeing nervous , but hope you are able to give it a bit more time and it heals.
I am now getting steroid injections to help with my back pain, my legs already seem more useful!!
Please keep me updated, my prayers for you.
Hi Jewel, I'm so glad that Dr. Denlinger is working with you. I apologize that I don't remember but did you also say that you see Dr. Flume? And have they done sputum cultures? I'm so happy that he is certain it is noncancerous. That's always the scary part, isn't it? I hope you are feeling better with the steroid injections.
Jen