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Chronic pain and trying to find the cause, going mad

Chronic Pain | Last Active: Jul 2, 2017 | Replies (14)
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@edda

I can understand your feelings!
I am in constant pain more or less at times. Been to a Gastrologist, neurologist and pain specialist, and now to a cardiologist. There are no answers, only pills for pain.
I know, that it is not in my head. Nobody understands and is upset, when I cancel at last minute, because I am in a lot of pain. Headache, intestinal pain, dizziness and I know, there is something wrong with me!
It all started three years ago, after I had open brain surgery. Before I was never sick, was happy and loved life with my husband and family!
Now this is getting me down! Doctors tell me, I do not look sick and they can not see anything on the CTs and MRIs, though I lost 40 lbs and have pain constantly and stay home mostly.
Does anybody know, or has gone thru something like me?
The headaches are effecting my eyes
and neck now, that we were thinking of a spinal fluid leak, I am fine for several hours
and then everything starts, and I have to go home and lie down and it does get better then!

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Replies to "I can understand your feelings! I am in constant pain more or less at times. Been..."
GailBL, Alumni Mentor | @gailb | May 20, 2017

@edda. Im so sorry to read about your pain and frustration looking for someone who gets what is happening and will search for the root cause. Why did you have the brain surgery 3 years ago? I don't know much but it sounds as if your issues are related to the surgery you had. Are you still seeing the doctors involved with your surgery? Perhaps seeing another doctor outside the medical center in your community might help. Have you been seen at a Mayo clinic? I recommend doing that as they are very good and very thorough. Sometimes doctors are reluctant to search for a problem they may have inadvertently caused.

I hope you can find relief and answers. Perhaps someone on here will be able to help.
Gail B. Ledesma

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