Sad news, but I think he declined treatment very early on

I was diagnosed with early stage Gleason score 6 prostate cancer in November of 2018 at the Mayo Clinic as part of a general medical exam which I primarily asked for to have diagnosed complex neurological symptoms I was experiencing after a series of injuries and bad, even abusive medical care which led to a severe benzodiazepine withdrawal syndrome which resulted is those symptoms which the doctors at Mayo Clinic refused to verify just as the medical doctors who caused the benzodiazepine withdrawal syndrome caused were refusing to admit what they did to me. The Mayo Clinic is useless, who can trust them? To explain what am saying involves a more comprehensive explanation, but, I know I do not trust the Mayo Clinic. I am still suffering from severe nerve and muscle issues that the Mayo Clinic refuses to examine and diagnose, because they are not really the place they claim to be saying that you should go to be seen there when no one else is doing anything for you. I had a so called cancer care team after the diagnosis of stage 1 Gleason 6 prostate cancer and can't even get a message through to the doctor that said he would be available to message on the patient portal when I finally got back in for a followup PSA and MRI in 2024. At that only followup appointment in 2024 they found my PSA had gone up to 14.7 and the MRI showed the spot in the prostate had also lit up more. They said they wanted to do another biopsy, but, since they already did one and found cancer in November of 2018 I didn't want them to spread it with another biopsy and I also did not want to pee blood for another week and a half like the first time I had one, so I asked for a PET Scan to see if it had spread outside of the prostate throughout my body in after the 5 years since they last saw me. They refused to do a PET Scan, but, the doctor in my "Cancer Care Team" said I could message him on the patient portal, I told him I hadn't been able to do so since 2019, he said he would fix that, I haven't been able to message him since, so, I know the Mayo Clinic does not care. In the fall of 2025 I got a referral to Mayo Clinic for a general medical exam for the ongoing nerve and muscle symptoms, and other issues, which included followup on the prostate cancer. I got this reply in an email regarding my request to be seen at Mayo Clinic: Consultative Medicine Clinic
To: You
We appreciate the confidence you have expressed in Mayo Clinic and thank you for your recent request.
The Division of General Internal Medicine, Minnesota has received your information. Unfortunately, demand for our health care services exceeds our capacity. We have thoroughly reviewed your provided materials to determine if we can add further value or treatment options to your care. Unfortunately, we are unable to offer you an appointment at this time. Please know decisions like this are not easy, Mayo Clinic strives to provide the best care possible to all of those in need.

My reply to them which I don't think even went through was this:
To: Consultative Medicine Clinic
You say you appreciate the confidence I have expressed in Mayo Clinic, but obviously such confidence would be misplaced, I really did not expect that you would do anything of benefit to me, I just thought I had to prove it by getting a referral to make it clear that you are totally useless and that to have any confidence in the Mayo Clinic is misplaced confidence, I believe I have proven that the Mayo Clinic is a useless medical entity. I will cure myself and advocate that everyone else should do the same. I know you are completely and utterly useless.

@survivor5280 yes..but what I meant was that I had read he did not want to be treated traditionally and lost several yrs which -if he had been treated with ADT, radiation, etc- the outcome may have been different. I also wondered about Ryne Sandburg and several other more or less famous men who passed away from PC. At theend of the day, we are all human and brothers, whether we like each other or share political belief or other sympatico...I abhor cancer deaths of any kind..but I do like to know particulars of PC deaths..just to know more of the details as to why they died..( in Scott's case, I think he did commit to anti-parasitic medications, ivermectin and fenbendazole early on, which obviously did not suppress his PC at all )

What are your sources?

I was diagnosed at PSA 28 due to my own ignorance. I’ve assumed Scott was in the same boat.

It matters to me because I’m disappointed that he didn’t share what wrong choices and bad decisions he made. I don’t mean I wished for a struggle session. I wishes for Scott to use his audience and remaining time to raise awareness of how a wealthy, intelligent man can die from a preventable disease.

I’ve never found any discussion by Scott of his journey - meaning, again, how did it get so advanced? So if you’ve heard details please share the source.

It won’t help me. I know how I let it get so far. I’d like to understand how Scott’s got so far. No man should die if this disease but if wealthy guys like Scott Adams & Ryne Sandberg are dying then PC prevention messaging is inadequate.

@kenshabby I agree it would be nice to know some details of Scott Adams and Ryne Sandbergs situations. It would help many men by raising awareness. However, in my situation, I had my psa tested every year since 2016, but all of the sudden in Jan 2025 it had gone to 4.3 from 1.0 and I now have Gleason 9 IDPC. I think sometimes men get crazy aggressive PCa and you can’t always blame the man for not getting screened. I wish I would have been getting tested every 3 months but im not sure anyone does that prior to a cancer diagnosis.

I am not certain but my understanding is that he did try conventional treatments for years but as things progressed he then also tried some of the alternative treatments - which also didn't work. And that he'd been in the process for 5-6 years or more.

He was entirely in favor of "conventional" treatment regarding the COVID vaccine, which upset some of his audience, and a couple of years later he said he'd been wrong about that, but his basic positions seem to have been conventional.

@carbcounter I think that is more than likely; when you’ve gone the conventional route for PCa and it continues to get worse, what alternative do you really have, BUT ‘alternative’?
I might take worm poison myself if it came down to the ‘quality of life’ speech from my doctors. Just go home and die? Nope… You never know if it might work for you, even if someone else had zero success.
Certainly NOT advocating for alternative treatment over what is KNOWN to work in 95% of cases, but if you’re in that last 5% it is your call…
Phil

@xahnegrey40 From last May:

❝Adams did not go into detail about his treatments, other than saying the anti-parasitic medications ivermectin and fenbendazole did not work for him.❞
https://www.npr.org/2025/05/20/nx-s1-5404399/scott-adams-dilbert-prostate-cancer-biden
Adams did not say whether he tried conventional treatment before that, so we can't assume he didn't, but I appreciate that he did a public service in sharing his negative experience with self-administered anti-parasitics, and also that he condemned attempts to politicise former President Biden's PCa diagnosis (despite not being a supporter).

So in the end, he did good.

@kenshabby ❝How did it get so advanced?❞

I suspect my situation was similar to yours and Mr Adams' — my PSA was nearly 68 and the cancer had spread to my spine before I had a clue that I might have any cancer, much less prostate cancer (I was only 56 at the time). The doctors told me that a small minority of prostate cancer cases are like that — they srart young and metastasise almost immediately. That's probably the kind that killed people like Frank Zappa, Johnny Ramone, and Bill Bixby young.

Fortunately, these days, even de-novo advanced prostate cancer is often manageable long term with new meds and treatment strategies, if you get in early and treat it aggressively. That wasn't the case 5–10 years ago, but we have real hope today that they didn't have.

@heavyphil If I were out of options and there were a legit-but-risky treatment still in early-phase trials, yes, I'd take a chance, but if I'm going to take a big risk, I'd at least want evidence-base hope of a benefit (even if it was only a 5–10% probability).

But otherwise, why make myself even sicker and ruin my last months, just because some influencers desperate for YouTube followers have declared that drinking Chanel N° 5 (or whatever) magically cures all diseases, including cancer?