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@songfamily2025 Hey there friend! I'm SO sorry to hear of your ongoing challenges...what a difficult battle you are fighting, but you are very brave not to give up! As I was reading your post, I could *literally* feel your pain. Ouch! You are exactly right - CRPS (RSD) is known about, but underdiagnosed and not talked about enough. It's so complex, I realize, and very hard to get right because each individual is different and no case alike. I've heard so many mixed reviews about any kind of fusion surgery, especially the cervical kind like you had. I would be very hesitant to let anyone mess with my neck unless it was nearing life or death, or absolutely necessary, to say the least. I am very glad to hear you are receiving care - hopefully it's taking the edge off and giving you relief enough to function and enjoy life as best as you can. CRPS is definitely a "new normal." I never took morphine or ketamine, although Ketamine was next on my list to pursue. However, I'm waiting to see how this new track I'm on will pan out - plus, some outside factors have changed, i.e. less constants - but I'm very interested and have heard all good things about Ketamine infusions, including what you mentioned - the long-term pain relief, for however long that may be. There are some places here where I live that do it and I know my neurologist would be on board if I ever suggested it. He is a wonderful advocate on my behalf! I wish everyone could be under his care - he's the model Dr, honestly. Both he and my pain Dr's know about CRPS (my pain DR actually lives w/ CRPS, so it's very personal for him). Yes, of course - I'd be happy to keep in touch. I try to get on here somewhat regularly, but sometimes life gets in the way, so please don't take it personally if radio silence happens from time to time. Sending good thoughts and wishes your way!! Sorry you have CRPS, but glad in one respect because you are another kindred soul who can raise awareness and help others deal with this tough disease. You are an encouragement to me!

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Replies to "@songfamily2025 Hey there friend! I'm SO sorry to hear of your ongoing challenges...what a difficult battle..."

@rivermaya34 Thank you for your quick answer. Reading your profile made me realize that you have a lot pain every day and yet you are out to encourage people like me. I admire your spiritual strength. Like you I do have a pain management doctor who is very understanding and sympathetic. I am on narcotics on the clock, I wonder how you manage your pain from all the different problems you have without narcotics. What new track are you on, can you share that with me? How many years have you been suffering from CRPS and how was it treated?