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DiscussionTips about preparing for my second opinion appointment at Mayo
Neuroendocrine Tumors (NETs) | Last Active: 10 hours ago | Replies (15)Comment receiving replies
Replies to "Yes, February 16,2026 at 9am"
@mlassen1 Hello and welcome to Mayo Connect. I’ve been going to Mayo Jacksonville since 2017, started with prostate cancer. My urologist recommended me to Mayo, glad He did no surgery, no radiation, no chemo, and the cancer is still as it was in 2017… (just monitoring)Then December 2022, I was diagnosed with NETS, small intestine primary, metastasized to liver. After meeting Dr. Starr and the medical team I didn’t go for a second opinion, their confidence and knowledge of NET’s made me feel comfortable and confident with the treatment plans we discussed. I also like the fact that I can have bloodwork done, CT or MRI , and see the results and talk with the medical team most times the same day.. I’m fortunate to live only 40 minutes away.. My best to you …
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@mlassen1, I agree with everything that @roch posted. I'm also tagging fellow NET members who I believe are patients of Mayo Clinic in Jacksonville, Florida like @vinnie694 @rodneysmom @amandafl @jeanern01 @teresap1976 @tammyv615. They can share a bit more about what to expect and what the first visit to Mayo was like for them and how to prepare.
You will be in good hands at Mayo Clinic. You might be interested in the discussion in this support group too:
- Visiting Mayo Clinic https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/
Now that your initial appointment has been made, you will see additional appointments added to your schedule. Closer to the appointment date, you will receive a detailed Patient Appointment Guide. This is a comprehensive itinerary of your appointments and any special notes of things you need to know or do for the appointment.
Regarding flight arrangements, you may wish to book a flight that is flexible. Mayo Clinic offers a service to help with airline bookings. It is called Mayo Clinic Patient Travel Services. Patient Travel Service can make flight reservations ($25 fee per reservation, up to $50 for a family), manage changes to your travel itinerary, make hotel reservations, and arrange ground transportation, including airport shuttles, limo service or car rental reservations. Read more here: https://www.mayoclinic.org/patient-visitor-guide/travel-services
In addition Mayo Clinic offers a free Concierge Service that can be a great help ease the burden as you prepare for your first visit to Mayo Clinic. They can help with things like getting you set up with the patient portal called Patient Online Services, narrow your hotel options based on your budget and individual needs, recommend restaurants personalized to your preferences or diet and help with directions to and around Mayo Clinic, including shuttle bus schedules, etc. https://www.mayoclinic.org/patient-visitor-guide/minnesota/concierge-services
You'll be in good hands at Mayo Clinic. Keep asking questions as they come up. 🙂