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I was diagnosed with early stage Gleason score 6 prostate cancer in November of 2018 at the Mayo Clinic as part of a general medical exam which I primarily asked for to have diagnosed complex neurological symptoms I was experiencing after a series of injuries and bad, even abusive medical care which led to a severe benzodiazepine withdrawal syndrome which resulted is those symptoms which the doctors at Mayo Clinic refused to verify just as the medical doctors who caused the benzodiazepine withdrawal syndrome caused were refusing to admit what they did to me. The Mayo Clinic is useless, who can trust them? To explain what am saying involves a more comprehensive explanation, but, I know I do not trust the Mayo Clinic. I am still suffering from severe nerve and muscle issues that the Mayo Clinic refuses to examine and diagnose, because they are not really the place they claim to be saying that you should go to be seen there when no one else is doing anything for you. I had a so called cancer care team after the diagnosis of stage 1 Gleason 6 prostate cancer and can't even get a message through to the doctor that said he would be available to message on the patient portal when I finally got back in for a followup PSA and MRI in 2024. At that only followup appointment in 2024 they found my PSA had gone up to 14.7 and the MRI showed the spot in the prostate had also lit up more. They said they wanted to do another biopsy, but, since they already did one and found cancer in November of 2018 I didn't want them to spread it with another biopsy and I also did not want to pee blood for another week and a half like the first time I had one, so I asked for a PET Scan to see if it had spread outside of the prostate throughout my body in after the 5 years since they last saw me. They refused to do a PET Scan, but, the doctor in my "Cancer Care Team" said I could message him on the patient portal, I told him I hadn't been able to do so since 2019, he said he would fix that, I haven't been able to message him since, so, I know the Mayo Clinic does not care. In the fall of 2025 I got a referral to Mayo Clinic for a general medical exam for the ongoing nerve and muscle symptoms, and other issues, which included followup on the prostate cancer. I got this reply in an email regarding my request to be seen at Mayo Clinic: Consultative Medicine Clinic
To: You
We appreciate the confidence you have expressed in Mayo Clinic and thank you for your recent request.
The Division of General Internal Medicine, Minnesota has received your information. Unfortunately, demand for our health care services exceeds our capacity. We have thoroughly reviewed your provided materials to determine if we can add further value or treatment options to your care. Unfortunately, we are unable to offer you an appointment at this time. Please know decisions like this are not easy, Mayo Clinic strives to provide the best care possible to all of those in need.

My reply to them which I don't think even went through was this:
To: Consultative Medicine Clinic
You say you appreciate the confidence I have expressed in Mayo Clinic, but obviously such confidence would be misplaced, I really did not expect that you would do anything of benefit to me, I just thought I had to prove it by getting a referral to make it clear that you are totally useless and that to have any confidence in the Mayo Clinic is misplaced confidence, I believe I have proven that the Mayo Clinic is a useless medical entity. I will cure myself and advocate that everyone else should do the same. I know you are completely and utterly useless.

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Replies to "I was diagnosed with early stage Gleason score 6 prostate cancer in November of 2018 at..."

@rm61, there is a lot to unpack in your message. If you have complaints about the care your received at Mayo Clinic for prostate cancer, I encourage you to contact the Office of Patient Experience. Here's how:
https://www.mayoclinic.org/about-mayo-clinic/patient-experience
Phone: 844-544-0036
Email: opx@mayo.edu

They can also help with issues related to the patient portal.

It sounds like your PCP made a physician referral to the General Internal Medicine department. As the letter stated, this department receives more requests for appointments than slots available. I'm sorry that you were unable to get an appointment at this time.

I agree with @jeffmarc that you might consider another center of excellence and urge you to consider the testing required to monitor your health.

@rm61
That is really unfortunate on so many levels and I am advising you to look for help in another center ASAP. Even if they offer you all that you require it is obvious that you lost confidence in your team and that can only be source of great anxiety going forward.

Please go to anther Cancer Center of Excellence ASAP and try to follow doctor's advice regarding steps that need to happen for proper staging and diagnosis. Scans can check for spread and they will be done, but correct gleason evaluation is externally important for decision making regarding treatments that will be implemented. Also, you need to know your Decipher score that is done on biopsy samples to evaluate aggressiveness of your cancer. And no, biopsy does not disseminate cancer.

I hope I understood wrongly your statement that "you will cure yourself" - I hope you do not mean just using some alternative treatments ? : (((

Wishing you all the best and do not give up - just find medical team that is available and willing to work with you .

@rm61

I am sorry you had to go through all your issues. I have a wife who has had over 50 operations with co-morbidities and a brother who had multiple types of cancer who died recently in a way nobody wants. It's incredibly frustrating when all you want is to be fixed and you are not getting there.

I am a big fan of Mayo as my wife also had a serious heart issue and she was well taken care of recently in Mayo Jacksonville. I agree with others here, try another center of Excellence. My radiation oncologist is at Orlando Health but trained at MD Anderson. To quote her: we are all making our best educated guesses. No guarantees.