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suzanne63040 avatar

Adrenal insufficiency

Diabetes & Endocrine System | Last Active: Jan 14 3:05pm | Replies (4)

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Profile picture for shoregirl @shoregirljill

Suzanne. I know it’s been some time since you posted.
I’m at the beginning of this kind of roller coaster.
I’ve had multiple diagnosis auto immune for sometime now I’ve been on high dosage of prednisone (orig 60 mg) over the course of three years successfully taper down to 10 mg but every time I try to taper below 8 mg I seem to go into some level of adrenal insufficiency. I’ve actually heard of doing like three days on 8 mg a day on 7.5, 3 day on eight day on 7.5, 3 days on eight etc..then taper to 2 days between and eventually to 7 then 6.5 etc. I wish you well.

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Replies to "Suzanne. I know it’s been some time since you posted. I’m at the beginning of this..."

@shoregirljill
Hi there. I have tapered down to 7mgs from 10 by doing the alternating days. You really have to go slow. When I went to 8mgs, I just did 8 each day and my body aches were so severe that is when I knew I had to start with alternating days 8 & 8.5. I did that for 3 weeks and then I was able to do just 8 for about 3 weeks. From there I alternated 8 & 7.5 etc. I’m keeping each change at 3 weeks because I am nervous about the adrenal insufficiency as well as flare ups of PMR. The hope is that my adrenal glands will start functioning again. I have noticed that pain in my body is more apparent as I reduce the prednisone. I’ve been on it so long and it has been I guess controlling my levels of inflammation like a temporary bandaid.
I sure pray that you will have good success with getting off of this medication.