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Is it PMR?

Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (20)

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Profile picture for shoregirl @shoregirljill

Terri. After being at this for some many years, you know they may yet change or they might just be adding Dx’s.
Of course with auto immune diseases we often end up with multiple diagnosis over time.
I started with PMR, immediately added GCI (Giant Cell) eventually they did add 1 or 2 more Arthritis forms.
Wish you wellness and the ability to find joy in the experience of the everyday.

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Replies to "Terri. After being at this for some many years, you know they may yet change or..."

@shoregirljill

"I started with PMR, immediately added GCI (Giant Cell) eventually they did add 1 or 2 more Arthritis forms."
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So true!!! I started out with reactive arthritis with uveitis about 15 years before PMR was diagnosed. When PMR was diagnosed I was naive to think that my diagnosis was being changed. I asked my rheumatologist what happened to reactive arthritis thinking maybe it was gone and PMR replaced it.

Subsequent to PMR being diagnosed there was degenerative osteoarthritis and gout. At one diagnostic review at my rheumatology visit I learned the I had the "full range" of rheumatology conditions and it would be impossible to adequately treat everything.

I stopped worrying about what diagnosis I had. Apparently my inflammation pathway is driven mostly by the IL-6 cytokine because Actemra works really well for me.