@pierwell Sorry to hear that you had 2 ablations with minimal effects. And I thought the diagnosis of my small nerve fiber was weird. This diagnosis is different than anything I have ever known or heard about. I had head pressure and blurry vision Feb. 17th 2025 and no one could tell me anything after seeing different doctors. Then came head pressure every day. my regular doctor sent me to the pain management and I read they do more than that. First time in 11 months I finally feel like I am getting somewhere. I will be the bull in the china shop from now on when it comes to my health. NO more Mrs. Nice guy. I wish you well! @rnlorena

@pierwell same with me. I did have one, but they might give me a 2nd? just order a new roll
pillow, my days of using my precious down pillows are over. When my headacks begin I think
those pillows give my neck O support. Here goes another stab a help????

@pierwell I was wondering myself. I had one ablation a few years ago (no improvment). Pain Dr.
said it usually isn't a good sign for a 2nd. But I think I will ask my new Pain Dr. Hoping our days
get better....

@pierwell I’ve found ablations hit and miss. The one I had 4 years ago worked great. It took about 8 weeks for all my symptoms to go away and then got 20 months of full relief. I thought ON was behind me. Then it came back quickly and my Pain Specialist had moved out of the area. Second doctor claimed to have done the same procedure, but seemed to make my pain worse! I went a multiple medication approach (Gabapentin & Duloxetine) plus a CGRP Inhibitor and slowly pain improved for a year. Then came back again, only this time it’s been 24x7 intense pain, dizziness, blurry vision, and occasional vertigo for 9 months. New doctors took over my case last summer and Pain Specialist was able to get all of my old medical records. Seems the second ablation doctor didn’t do the same nerves and lies about it! I’m scheduled for another ablation in early spring. My insurance company requiring two trial ablations (typically it’s with lidocaine) 3-4 weeks apart before the real ablation, So insurance is making me wait from December when my doctor went for prior authorization until end of March for the real procedure. Then if like the first ablation, symptom reduction was slow for 6-8 weeks more. I’m out on disability and will probably lose my job since they only had to hold my job for 90 days. At this point I’m also starting to explore both PRP and Stem Cell injections which insurance will not cover.