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Is it PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 21 2:01pm | Replies (21)

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@rocksology

I'm on a biologic called Actemra (tocilizumab) which is in the same classification as Kevzara. They both work in the same way.

If you have inflammatory arthritis alone or in addition to PMR, it should be easier to get Actemra covered and paid for with original Medicare and a supplement. Actemra can be given as a monthly IV infusion. For some reason it is easier for inflammatory arthritis patients to be approved for a biologic when administered by an IV than it is for PMR patients to be approved for Kevzara as a weekly injection.

It is true that insurance companies want you to try less expensive options first. My rheumatologist didn't exaggerate when he said all other treatment options had failed in my case.

What seemed odd to me is that some people say prednisone is "the only and the best option for PMR." It is no wonder that research into better treatment options for PMR has lagged behind other autoimmune conditions. If patients believe prednisone is the only and best option for PMR then there isn't any need to find another option.

My rheumatologist thought Prednisone for the rest of my life wasn't a good outcome. My rheumatologist stated in the authorization request that "Actemra represented the best chance for me to ever get off Prednisone." It was clear he didn't believe prednisone for the rest of my life was a good option.

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Replies to "@rocksology I'm on a biologic called Actemra (tocilizumab) which is in the same classification as Kevzara...."

@dadcue thank you for sharing your experience. I first got PMR in 2021. On prednisone for 20 months and then 3 years in remission . Started back on prednisone this March for PMR. I’ve noticed now though having pain in my hands and knees. Last visit to my NP said I may be developing RA or psoriatic arthritis. I’m concerned about going on a biologic, but it would be great to get off prednisone and I need to be open to other better treatments..