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Trying To get Answers About GCA
Autoimmune Diseases | Last Active: 1 day ago | Replies (8)Comment receiving replies
@alandy233, how way your diagnosis of GCA reached? Did you have a temporal artery biopsy?
I had three incidents of visual disturbance before being diagnosed, but I didn't have any vision loss from GCA. I was treated with Prednisone, then off it for a year before I relapsed and had treatment with prednisone for another year. Currently, my inflammation marker - CRP - is normal.
Do you know how much experience your current doctors have had in treating GCA?
I'd be interested in hearing what your Rheumatologist has to say. It's too bad you have to wait for an appointment in March. Maybe you can you get on a cancellation list for a quicker appointment.
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@tsc Thank you for checking in and sharing. To be honest and this is just my opinion I don't know how much experience my Doctor has in dealing with Vision Loss related CGA. From the way he is handling my treatment and being conservative with the medication protocols I have a feeling I may be his first GCA w/ associated Vision Loss patient.
I picked up the new Hi Dose meds today for the updated protocol and I will start with the Prednisone and Folic Acid tomorrow morning. My Doctor suggested that I wait until Saturday to do the Methotrexate due to the possibility of side effects and what they might be and I can agree with that.
I did call the scheduler at the Rheumatologist to try to get an earlier appointment and got a cold reception. I don't know where you are but here owns and/or runs most of the hospitals and outpatient facilities and they are not known for being that warm and fuzzy. Not a lot of orange slices get passed out.
I will continue checking in with this good group and will keep everyone advised and updated.