How do you mentally handle reoccurrence?

@montydThanks for the encouragement, prayers and wise words.

We're so sorry that you have to go through this. Keeping your spirit up when dealing with cancer is difficult but so important. My husband was diagnosed 30 years ago with 1 tumor. He had surgery to remove the tumor and 1/3 of his colon. 28 years later, he was rediagnosed Stage 4 with tumors throughout his skull and body. He has been on lanriotide for the past 3 years -- no increase in tumors or in size of tumors. He continues to live a normal life basically doing whatever he wants to do. He is 82 years old, rides a bike 30 minutes a day and does 100 pushups/day. We've had to adjust some of our eating habits. He takes papaya and Zypan enzymes before each meal and does his best to get enough protein. We do our best to trust that life will go on. On our bathroom mirror we have a reminder note: "A cheerful heart is good medicine, but a broken spirit saps a person’s strength." Proverbs 17:22. It is difficult to not be depressed but it is so important to try to remain cheerful -- attitude will affect your health! I totally agree with one of the other comments -- "you are stronger than you think"!! Keep posting -- this connection with other NETS patients is very helpful! Good luck on your journey!

@frogsong: How is your DAY going? I sincerely hope that you have found solace in the many NET patients who have shared their concern for how you are feeling about your future. My hope for your best health remains.

@dbamos1945 Thank you so much for inquiring and for your kindness and encouragement (and this extends to everyone who took time out of their busy days to post!) It has all helped me so much…. I posted as my most vulnerable self.

But today I have better perspective thanks to you! And everyone who has offered up meaningful suggestions and points of view. It is helping me to see more clearly and put things into perspective.

Today someone told me to practice gratitude on a daily basis. I will endeavor to do this. Because truly I am grateful for the life I have had,( but maybe just a tad greedy for wanting more of it?)

Vinnie brought up such a good point about young children who are stricken with terrible disease… I felt a bit of shame honestly for complaining about my plight! I have lived a full life of great health and privilege! Who am I too complain…( I just might be a bit too greedy)

Seriously. Thank you everyone, for sharing , caring, and throwing me a life preserver when I needed it. It truly helped.

Hello Dear,
I'm so sorry for your hard conditions! I have an Adrenal Adenoma it's non cancerous and supposedly no secreting. But I think it messes about with my Cortisol levels, and possibly my Low BP. I also have EDS, (Ehlers-Danlos Syndrome), PM, RA, OA, FM, & a few more Frikn conditions. (hah hah). You mentioned struggling with depression and the meds you are trying. I have been on Prozac, myself. I like that it's a simple, reliable, older anti-depressive med that doesn't have the harsh side effects that I experienced from other SSRI's & SNRI's. I also saw a Psychiatrist, instead of a BF Therapist. He prescribed a short term prescription for Klonopin, which I found really, really helpful. I was on the Prozac, but it hasn't begun working yet! I was having some very dark thoughts and considerations. I had my awesome kids to keep me going, but I was still really struggling. The Psych Dr. saw right through the clouds I were under and put me on the anti-anxiety med right away. Within a few doses, just days for me, the gloomy, dark thoughts began to fade away! I've always been grateful for that Doctor. In the years to follow I have wished many times that I could still take Klonopin as needed, (I'm a Very responsible medication user), but it's not allowed, with the pain medications that I must have.
I hope you find the treatments you need to make your life easier. Take Care.

Hello
Your posting was a positive step, build on that. Most of us are on a similar ledge and it’s scary when you look down.
So don’t look down, look up.
I am shit scared of dying too, and your post helped me say it out loud. So thank you. All we all can do my dear is walk on with hope and a smile. I find doing qigong very helpful, gentle exercise and meditation combined look on YouTube. Keep posting and share with us all
God bless.

Go get professional help from psychologist

I am so sorry to hear everything you are going through. As you heard from other respondents, it is very important to empower yourself and learn as much as you can about this disease. New treatments are coming out rapidly and it is crucial to consult with a NET specialist.
Someone else posted the https://netrf.org/ link. I also wanted to add the info for the Carcinoid cancer foundation lin (https://www.carcinoid.org/ ). You will find lot of resources here, including list of specialists. One of the absolute best is Dr. Liu. He is in Colorado and I am not sure if he does televisits. However, he has a facebook page where he holds monthly live sessions and you have the opportunity to ask him questions and also connect with other survivors and caregivers.
Dr. Liu's Zebras: A Neuroendocrine Cancer Community https://www.facebook.com/groups/402282629858283/
Finally, Mayo clinic also has monthly live support group sessions which are very helpful. The monthly meeting is usually posted on this link, although I have not seen one for January.

You are brave your brave enough to realize your having an imbalance that is bring you down dark paths of fear. Your brave enough to say it and your brave enough to get help. You are so much stronger than many. This is very common with cancers that’s why my oncologist does a questionnaire for ever patient every three months are you sad scarred and why are you eating to little too much why and then appropriate referrals to psychiatrist, therapy, dietician. This is more common than any of us want to admit. Thank you for sharing there are many who may never respond but will read and learn from this entire thread. I hope they send you thank you for your bravery to discuss it.
For me personally the things that help. It is not if it coming back I accept that it is coming back who knows where ovaries gut lung bones nobody knows. I just accept that I will always be on watch and sometimes it will be good news slow growing and some times it will be great news nothing new minimal growth. I am blessed and have been given the blessing to make everyday out of all the days I have I am in year 6 and I feel better than year one. Accepting the roller coaster is part of the battle. I do red light therapy 3-4 days a week sometimes 5. I eat a variety of things moderation is good. I stay away from cakes cookies candies and sugar in general. I am diabetic from my lanreotide injections. I drink water sitting in fresh lemon and fresh sliced ginger constantly. I pray usually to get my family thru this I am fine with it but worry about them especially my disabled daughter. I ask the Holy Ghost to work hear on earth to accomplish the impossible miracles. I ask to not crave sugar and for the strength to say no always because my body can’t processes it. I ask the Holy Ghost to give my family the same warm blanket hugs I get from prayers. I pray they are given peace. I talk to god not out loud in my head he is my friend who can hear everything which slows me to get things out so I’m not caring them with me. I try to find ways to help others when you can’t do your normal productive things all the time it’s easy to deal useless. I find helping others makes me fell like I have purpose. My mom has a lot of fear and depression over my condition I ask the Holy Ghost to rush to her and fill her with balance comfort and positivity about all the time we have with the slow growth. One thing I have trouble with is that I may never have grandkids in my time and may never know them. I think about what I can leave behind through others that may touch them someday. I learned how to crochet so maybe I can put away someday grandkids toys. Hope this is helpful. prayers for peace and let you be filled up with hope and covered in a warm cozy blanket that protects you always.

@michellehcapouch Oh my Michelle, you have so touched me…thank you for your extreme kindness and warmth of your words.