@dand6353
A lot of people struggle with exactly what you’re talking about. Low testosterone can be a problem? For some people testosterone never comes back to Levels that take away those side effects. It is very common for people to take a long time to have their testosterone returned to normal After they stop Lupron.

I was on Lupron for six years and orgovyx for 9 months when I stopped Taking Orgovyx. After seven months, my testosterone hit 50. It was going up about 25% a month. Sounds similar to what you’re having. I was 77 and on it for a long time. I know what the rate it was going up if I gave it another six months I’d be oh well over 100. It’s a known fact that it takes longer for testosterone to come back as people age.

There is an option. You could get testosterone injections that would boost your testosterone level. Some doctors won’t do it, especially if you had a high Gleason score. Speak to your doctor about getting injections if you can’t wait any longer. There is a risk to doing this, Your cancer could come back more quickly, so get PSA tested more frequently.

@dand6353
Now 6 months after stopping Lupron, my horrible side effects are just starting to lessen. I had severe headaches, 24 hour a day soaking sweats, joint and muscle pain, brain fog, and multiple muscle cramps. I am 83 and had a PSA =11.1 and Stage 3B prostate cancer treated with 44 radiation treatments and 4 months of Lupron. Had to stop the Lupron as I felt it was killing me. At one month and 4 months after stopping Lupron I had PSA < 0.1 and testosterone < 8. Several recent studies including Duke Health's AI work indicate that low testosterone may actually help aggressive cancer. It may take a decade for the health industry to determine the best hormone treatment.