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CRPS - anyone suffering with complex regional pain syndrome
I am new to this forum- my 40 year old daughter suffers from CRPS that has spread to whole body - her nerves are on fire... it is attacking her digestive system too where she has severe GERD. She goes to Pain Management doctor, gastrointestinal doctor and has wonderful PT that helps to loosen her tense muscles which can eventually atrophy. this was recognized in 2014 as a rare disease by CDC but her chronic pain is intense... we keep searching for help and guidance... since many do not understand this horrible affliction.... thanks for any advice....
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Hi pfox - I have CRPS which was diagnosed 8 years and about 7 doctors after I started trying to get answers to my pain. Short story - I was constantly doing research and found out about the spinal cord stimulator. I was going to a pain clinic to get refills for Tramadol seeing a nurse practitioner and when I brought that up he made an appointment with the surgeon who then gave me information to read.
I have had it in since 10/23 and the improvement is amazing. It did take several adjustments from the nurse for Medtronic who makes it, but she’s local and has always helped. The last adjustment, about 4 months ago was the best. I haven’t made any since and I’ve resumed my line dancing and gym regularity.
I’m 86 and it’s not the best thing to happen but the scs has helped a lot. Good luck!