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Doctors Reprimand Me For No Osteo Meds
Dear One's, my 1st time back on the blog in years. The block has been an inspiration, encouragement and support to me when I was active on it. I have become more ill over the years with many diseases, one of which is osteoporosis. I've had 7 hip fractures; 5 pelvic, 2 Femur. Ouch! No known trauma. Recently I've had several doctors reprimand me for not being on any osteoporosis medications. They have escalated, raised their voice , shook their heads and all of the above. One of them was a hospital doctor who knows me because of so many hospitalizations, said to me that she has seen me decline quickly in the past few years and can see me in a wheelchair in the near future. It was talking with people on the blog about around the world years ago about their experiences with bisphosphonates, Prolia and other osteoporosis medications, and doing a lot of my own research, that made me decide not to take any medications. I felt it was a quality of life issue because if you take something that lasts for 6 months (that's how I would have to take it because of kidney disease) or 1 year, then any unwanted side effects, would last until the half-life I was afraid of. I just can't take more pain! Has anybody else been treated that way by physicians for not being on osteoporosis medication? My dentist told me not to take I think it might be Alendronate aka Fosamax because she said it can cause osteonecrosis of the jaw. If my understanding is correct, the meds can improve fracture risk but not reverse osteoporosis. I have not looked into the medications in a few years. Maybe there's something new I don't know? My last two bone scans showed improvement with taking 3 mg of boron three times a day. I do take other supplements but know they are not as good as what we need that is found in food. I pray you all may experience the comfort of God and the “Peace of Christ which transcends all human understanding" Philippians 4:7. That is the only thing that gets me through is knowing Him well enough and understanding His purpose in all things and, that this life is so temporary; but a blink of an eye in light of all eternity. Jesus said, I am the Way, the Truth and the Life, no man comes to Me but by the Father." John 14:6 SunnyFlower
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@njx58 Sunnyflower might benefit from anabolic since she is high risk if she takes the plunge.
@njx58 thank you for the clarification and knowledge
@kfhoz thanks so much. Do you know which drugs fall into that category? Are you talking about ploia and rec class?
@wews Anabolics include Evenity, Tymlos, and Forteo.
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1 Reaction@wews Unfortunately you need to read lots of medical & scientific stuff from good sources to be sure get accurate information. Here is a reasonable drug chart from a reasonable source, but the number of drugs it has under the "Antiresorptive Agents" does not agree with other sources. Still this can get you started with seeing what it lists as the anabolic medications:
https://www.bonehealthandosteoporosis.org/patients/treatment/medicationadherence/
@njx58 Aka
Drug Name Brand Name
Romosozumab = Evenity
Teriparatide = Forteo
Abaloparatide = Tymlos
Some papers etc use the drug name only. Also, some drugs have multiple brand names.
Source: https://mcpress.mayoclinic.org/healthy-aging/chapter-10-taking-medications/
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2 ReactionsWish there was a medication whose side effects don't frighten me. I have two comression fracturs at T5 and 12 and have no idea as to how or when I got them. I did get two lumbar compression fractures at L2 and L1. Don't know when I got the one at l2 The recent one at L1 has wrorsened scoliois, can not longer stand, sit or walk upright. Use walker but just bending forward over counter for more than 20 minutes does me in. I am 92 and also have two bad hips, sacralities, spurs in both hip and S/I joints, some other issues and just don't want any more.
@kfhoz Thanks so much. I unfortunatley looked at some of the drugs in this category and they are not advised for women who have had cancer since there is evidence that they caused bone cancer during research or can cause jaw bone loss which is a problem for me. I think I am sticking to natural approaches with weights and vitamins - I barely had osteoporosis in my spine of -2.7 and none in my femur.
@maymore evista (raloxifene) is an estrogen receptor. Not sure how it can be better than estrogen via the patch. For those of you that worry about breast cancer, know that unless you have a gene or something else that makes you vulnerable to breast cancer taking estrogen will probably not be an issue. (the black box was removed for the patch and creams-not pills). I
took evista when it was introduced in the '90s, but got terrible leg cramps from it. Have had no issue with estrogen and progesterone. I am 77. another warning they give (though this may not be for you in particular) is that you need to start estrogen right after menopause. The question I would ask is, why can't you take estrogen but can take reloxifene. makes no sense to me.
@jenatsky Disagree about bisphosphonates being first line of treatment. My doctor started me with a choice of Tymlos, Forteo or Evenity. They don’t work as well if you have previously taken a bisphosphonate. Fortunately I had never had one. Tymlos is working well with no side effects
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