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What could doctors do better for people with epilepsy?
Epilepsy & Seizures | Last Active: Apr 2 7:15am | Replies (71)Comment receiving replies
@santosha
I agree the side effect issue @laura1961 mentioned is important. The problem is, sometimes you have to make a choice between seizures or side effects. 60 years later I still have tiredness, ataxia, memory and aphasia although much better now. My doctor is concerned that I often fall and wants to stop one of my meds, but I told him if it isn't broken, don't fix it. I'd rather fall than possibly have seizures again. Been there done that and I don't wanna repeat it.
Take care,
Jake
Replies to "@santosha I agree the side effect issue @laura1961 mentioned is important. The problem is, sometimes you..."
@jakedduck1
Hi Jake,
I really respect your perspective, especially with so many years of living with epilepsy—you know what works for you and what you can manage.
There was a time when medications kept me 100% seizure-free, but left me very debilitated. That trade-off wasn't sustainable for me.
So based on that experience, I've found it important that the side effects of AEDs don't cause me more harm than the seizures themselves, something my current doctor agrees with.
I think what both our experiences highlight is how deeply personal these treatment decisions are. There's no one-size-fits-all answer, and what matters is finding what allows each of us to live as fully as possible given our own circumstances and priorities.
Chris
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@jakedduck1 I am sorry for your health issues. I am grateful for your honesty.