Boy, are you being given a real story. Don’t understand why you weren’t told the truth.
I was on Zytiga for 2 1/2 years. Its side effect are numerous. Gave me high blood pressure, Four instances Of afib, one landing me in the hospital for four days. Made my hot flashes much more severe. There are a lot of issues with Zytiga, but it’s a good starting point if you can handle the side effects. While I was on it, I was only undetectable for one month in 2 1/2 years. I do know people that Were on it for five years And it worked well for them. There were a lot of side effects still.
I switched to Nubeqa And have been on it almost 3 years. It has Almost no side effects at all. I’ve not noticed even one. Even though I am still on ADT, my hot flashes have stopped. I’ve had no Afib events and I’ve been able to reduce my blood pressure meds. Nubeqa Is the best of all of the ludamides. It doesn’t pass the Blood brain barrier like all the others so it doesn’t cause brain fog. I’ve been undetectable for 26 months while I’ve been on it.
Nubeqa has been approved for pretty much all different types of prostate cancer. There is a question about whether it is approved for metastatic castrate resistant prostate cancer. That’s what I have and it’s what I’ve been taking it for.. It is approved for castrate sensitive prostate cancer.. It is around $12,000 a month, so you do have to have your insurance pay for it. Medicare covers it.
Yes, a problem with estradiol is that it can cause heart issues. If you have BRCA2, you cannot use it at all. To prevent breast enlargement, you can have radiation to the chest.
@jeffmarc ugh. That’s what I thought too.
What would you do? I put in a request for another in person appointment as I didn’t feel we had adequate time to ask and have our questions answered. Of course, new questions post visit that I now want answers for. I feel like I now can go to another appointment with my questions written down and be more focused and prepared. There was also a, “fellow” there to observe the process etc. and it was somewhat of a distraction.
I am definitely not satisfied with her decision or answer as to why she couldn’t or won’t prescribe Nubeqa. I want answers. Concrete answers. As far as his insurance, he has good insurance in addition to Medicare so I am not too concerned about the cost of the drug, God willing.
Please advise what you would do as your next step? I have put in a request for another in person appointment. I have yet to reply to her message via the COH portal.
Thank you in advance.