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CISP Chronic Immune Sensory Polyradiopathy

Autoimmune Diseases | Last Active: May 6 11:14am | Replies (6)

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@rwgiroux

Thanks @johnbishop and @kanaazpereira. I will have a look at the articles. The effect of this condition is that for many years, I could not feel my legs or feet. This creates walking and balance issues. I was referred by my local physician to the Mayo, After a battery of tests, Christopher Klein provided a diagnosis. I am receiving IVIG and things have improved. For many years, my company's health insurance paid the bill. Now that I am retired, the issue I am facing at this time is getting Medicare to pay for the nurses who need to come out and administer my treatment. Medicare Part D will pay for the medication ( although my portion is still a large expense) but for some reason, Medicare doesn't want to pay for the nurses. It is not a medication that you can administer yourself. I continue to explore options. I was hoping that someone out there had been through this and has Medicare tips.

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Replies to "Thanks @johnbishop and @kanaazpereira. I will have a look at the articles. The effect of this..."

Thanks for sharing some more information. Sorry to hear Medicare is not stepping up to the plate on the treatment. It doesn't seem logical that they would pay for a treatment but not cover the cost to administer the treatment when the patient can't administer it themselves. Hopefully others that are receiving IVIG and are on Medicare can shed some additional light and offer some tips for you.

John

I recieved my IvIg through a cancer treatment and infusion center. I have a Medicare Advantege program which I do pay extra for. I also opted for the PPO which was extra too but medicare is picking up the whol tab so in the long run I am saving loads. And the nurses are great!