Weakness in legs: Is this part of neuropathy?

Does anyone with neuropathy in feet and spongy feet encounter sacral and pelvic pain due from standing or walking?

Has anyone tried the red light therapy? I have peripheral neuropathy. I have the spine stimulators they worked great for a year now not so much. I’ve had another fusion L4L3 I have been dealing with this for 35 years now after falling on ice. My balance is getting worse I keep walking hoping it will keep me out of a wheelchair.

Welcome @kekimmel, Quite a few members have tried red light therapy and I think it's a mixed review - helpful for some, not so helpful for others. Here's a link listing the different discussions and comments from members on using red light therapy for neuropathy: https://connect.mayoclinic.org/search/.

I'm glad to hear that you keep walking. I just wished I was able to walk more but I'm still thankful that I can walk even though not very fast or well. The Foundation for Peripheral Neuropathy has a list of complementary and alternative treatments for neuropathy if you haven't already seen it - https://www.foundationforpn.org/treatments/.

Have you looked into other alternative treatments other than red light therapy?

@johnbishop
I have tried a lot of different things for neuropathy. I have taken the drugs which I don’t like. I prefer no drugs the side effects are just as bad as the neuropathy. I’ve had 8 surgeries and will not do any more of them it takes me to long now to recover. Have the spine stimulators. They worked for a year. Now they think that it’s over stimulating me they have adjusted it but still not helping as well as it did at first. I do therapy in therapy right now to try and get some strength back in my legs after surgery. I read that magnesium chloride foot baths can help so started doing that 3 times a week. I also found Vitality frankincense oil balm helps a lot at night rubbing it in my feet a calf. I can sleep through the night for now but my experiences with neuropathy I find something that works and then later it doesn’t anymore so when I see other avenues I try I do how ever never believe that they can cure this. Maybe help me manage my pain but don’t believe there’s a cure. So sad

Yes, over the past 15 years ankle weakness has progressed. I cannot not give you numbers, but disease direct weakness, pain and extra stress from numbness derived balance issues. If you do require some support or touch spot for balance, I found that a custom cane helps greatly for comfort and confidense.

@dckuke Tjis is old bashful bob. I too have neurophy in the hans dand legs. about two years ago I was in pretty fair health. except for the foot numness, I went out side to work and there was a very funny smell in the air. I didn't think to much about it until I started to feel weak and as I was walking around my Garage I lost my balance and fell. I went into the house about 100 feet away. I made it but I was very weak. As I did my whole life, I said to my self you are not going to live this way. I started doing soft excersizs sitting in a chair. Arm, legs Body twist.every thing hurt to start. Showing me just how out of shape I was. After two weeks my body was building up. Not fast enough for me so I started modified push up using my kitchen counter.I could walk only aqbout 200 feet and my lungs gave out. So I found a small hill to build up my lungs and body. I didn't stop the excersize but kept it up increasing every week. Yesterday I walked a mile up hill then down. No problem. Or pain I use the red light or infared with a vibrator treatment on my feet and legs also drink my two table spoons of Apple cider vinigar in water every day as a natural blood thinner to open up my vains and get the oxygen to my feet and body. Today I feel very good. My nuerophy isn't bothering me as much and getting better and my balance is doing much better. When you do something like this you can't over do it. I started at 30 min twice a day. and just sitting in my chair watching TV, I do boxing. punches with the air that dosen't strike back. I don't believe in modern meds so I use Herbs. and excersize to that works wonderful no side effects. Good luck on what ever you do. By the way I will be 90 in a couple mo.

@positivehealth This is Bashful Bob . Yes with neuropahy that is common also when walking.The best way I have found to easy the pains and to make the spongy feet feel better I side a vibrator with infared on the ankle, bottom of the feet Vicks vapor rub. Makes everthing better dosent cure it but the excersize works great and allows you to do more. just don't over do. Good luck

Mine has passed that point—a short use of vibrator on my feet gave me awful rebound pain. I even have to wear orthotic shoes going from my bedroom to bathroom. The quickest relief i get for topical pain is my diy CBD balm with great carrier oils with 5 proven essential oils. The closest OTC or RX balm is Exhale Wellness —but it does not have multiple carrier/essential oils. I can numb my feet by stretching but that is useless for ankles, legs and hand

@quietriver
Thank you Bashful Bob for your suggestions for spongy feet.
So glad to hear you have improved.
Do you use an infrared vibration pad and for how long??
How often???
Greatly appreciate all your input.

@dckuke my go to for foot pain is also CBD balm