My fecal incontinence started abruptly before my ileostomy kind of out of nowhere. The. pelvic floor therapy at Mayo Rochester is supposed to be VERY good. It is a two week program. The only reason I was not a candidate is because I had PFT many times from different therapists over the years and it did not help. If PFT doesn't help, I would think SNS would, and is covered by Medicare.
I have more tests in Rochester next week to determine if a colectomy is something that would work for me. I have a loop ileostomy which I don';t like and want an end ileostomy if I have to wear a pouch. I was thinking I would ask if a J-Pouch would work for me when I have my video follow up appointments with GI and CR, but I don't want to have fecal incontinence again. I would think the SNS I have would prevent that. It would be nice not to have a pouch!
Back to you,...I would definitely do the PFT at Mayo Rochester. Not sure where you live, but I would still do it at that location. even having to stay in an extended stay hotel.