@cxracer It looks like your cancer is low grade but high volume, affecting almost your entire prostate. Focal therapy might not be an option, but you could ask about TULSA for the whole gland. I was told when inquiring about that option that, like radiation, it makes surgery at a later date, if necessary, very complicated. So, there is a risk.
If your decision comes down to radiation vs. surgery, make sure to ask your prospective surgeon if he believes that nerve sparing will be possible. If not, your decision will probably tilt towards radiation.
I was diagnosed one year ago at age 51, my partner is 35. I also tried to avoid ED any possible way but opted for surgery in the end because TULSA or Brachy monotherapy seemed not to provide sufficient cancer control. My biopsy was 4+4 but I was downgraded to 3+4 in my pathology, with 10-20% total cancer volume and 20-30% pattern 4. Decipher 0.2. Biopsies can be very unreliable, which in your case may mean that, given the high overall volume, there may be more pattern 4 than what your biopsy revealed. I would also discuss that with your care team.
I had surgery last June. Incontinence resolved quickly, though more urgency is likely permanent. I still have complete ED and will start injections soon. I took me some time to accept these risk before deciding on treatment but once I got there I felt good about my choice. Worst case scenario is a penile implant.
@topf My local urologist stated "nerve sparing is possible ...", and that is NOT comforting to me in the slightest. Not probable or highly likely. Possible. I've talked to enough men, including my father, to know urologists don't care if they do or don't spare your nerve bundles. Eradicating the cancer by removing the prostate is their only priority. And I get it, to a point. We need to be our own best advocates, like always. I will say though, prior setting up my consult with Mayo, I had flip flopped from choosing EBRT radiation and hormone therapy to surgery, based on the likelihood I will develop additional cancer in my pelvic region within my lifetime, and I still may opt for surgery in the end.
Thank you for sharing. I'll cross the ED bridge if / when I come to it, but dang I sure do want to avoid it at all costs, if I have other options available, without taking future options off the table.