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Bronchiectasis

MAC & Bronchiectasis | Last Active: Jan 19 9:49am | Replies (52)

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@alicebrew1
I have not been diagnosed with haemophilus B, nor any pathogen. Cultures x 2. Nothing grew.
Bronchoscopy- confirmed Bronchietasis and cultures for affected area of lung sent. Again, negative.
Haemophious B, is a very common colonizer and can cause exacerbations in bronchietasis, driving inflammation, impairs mucous clearance and may create a cycle of infections and damage.
It is a treatment challenge.
As mentioned by Sue cultures and airway clearance as very important.

1. Have you been cultured for other pathogens. Pseudomonas, Staph aureus, Non-Tuberculosis Mycobacteria NTM- Can be present and missed by standard cultures, Resistant to azithromycin.
And several others- FUNGI, Legionella, Moraxella, Klepsiella.

3. Have they prescribed a inhaler?
4. Or a nebulizer - fine mist to thin mucous, ease coughing, open airways, improve breathing by directly targeting lung.

5. Have you had a PFT? Help determine lung function, severity of bronchietasis and target best treatment options.

6. Are your immunizations up to date: Covid, Flu, Pneumonia, RSV? Check with pulmonologist for recommendations (based on history, age, vaccines).

Hope I have been helpful.

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Replies to "@alicebrew1 I have not been diagnosed with haemophilus B, nor any pathogen. Cultures x 2. Nothing..."

@lss111 hey there I did have pft. I definitely think haemophilus really caused broncheistasis to get worse . I do not think pulmonologist gave me that exact diagnosis . But I definitely have an area where airways enlarged . No nebulizer . I am going to ask about the saline treatment . Also am on trelogy but that’s for my supposed asthma . I have not taken for 5 days . Allergist said I could go off of it so I’m trying that . I have been tested I believe for all those things you mentioned I have not had my up-to-date pneumonia shot or RSV shot. I really am not getting any more Covid shots so I will check into the pneumonia shot. It’s just also complicated cause I don’t fit into anyone my puzzle pieces don’t match.

@lwhats a pft??ss111