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Aches and pains , what would you do ?
Polymyalgia Rheumatica (PMR) | Last Active: Jan 15 5:34pm | Replies (25)Comment receiving replies
@ronludington I have a similar experience, I have been off prednisone just for a month now and I asked my rheumatologist to send me for an ACTH test and he refused saying there is no evidence of adrenal insufficiency, meanwhile the pain is worse than ever, I don’t understand why they don’t help and just let you get the testing done, even just to satisfy your curiosity and reduce your stress, it’s baffling to me the lack of actual ‘caring’ about people’s experiences, it’s not just physical is something they don’t seem to grasp, just my experience.
I have recently purchased the Eli cortisol saliva tests to see what I can figure out myself regarding my natural cortisol pattern and concentrations.
Replies to "@ronludington I have a similar experience, I have been off prednisone just for a month now..."
@rosi75 Please keep us updated on your Eli self testing experience. We live in our bodies, not the doctors
I was reflecting, just yesterday, and thinking that PMR doctors should have experienced PMR themselves. I think my rheumatologist is still performing like she is still in school performing for a teacher or perhaps attempting to prove to someone that she is adhering to a preferred standard of protocol.
We, with PMR is different for each one of us. Often extreemly different.
Thanks for sharing. Best of luck and keep us updated.
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@rosi75 wow. I didn't know there was a test that we could buy.
I'll look into that too.
If you can, let me know how that goes .