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Why I am glad I chose Proton Therapy (for now). Good, bad and ugly.
Prostate Cancer | Last Active: Jan 21 11:47am | Replies (16)Comment receiving replies
@islander2025 This post made my side effects much worse than they really were. hey were unpleasant, but not unmanageable. I was horrified at the side effect profile of surgery, I am 58 and having guaranteed ED scares me to death. The real question comes in where they say surgery ED can go away, and radiation it can come on over time…so we will see. Right now the 5 mg of Tadalafil is working perfectly. So the point of my post is that I am glad I got Proton and I would recommend it to others.
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@mlewelling btw 5 mg talafadil a day works I take it also cause it has a negative effect on cancer cells and enlarged prostrate too
Take care
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@mlewelling wow im glad you are well. I have no surgery and dont want it. I’m responding well to Lupron 1st shot in oct21 by Dec 12 my PSA etc were awesome results very low .02 PSA my regular doc was blown away. Anyway my urologist sux I am switching to a new oncologist to get on Orgovyx because Lupron can cause Steven Johnson syndrome and I had a bout with that in 2012-13 I was lucky to survive it getting really bad. Anyway I have to get my ins to approve proton in Atlanta at Emory. They already have all my records negative PSMA, biopsy all that stuff. I live in Puerto Rico - proton is not available. VMAT is and it’s a good procedure much better than all the others. But I believe PROTON IS BEST. My oncologist convinced me to do the VMAT even though he would write a letter for insurance to pay for it in Atlanta. Now in reading a lot in here and people like you I’m gonna try to get the approval.. if I fail at least I tried. I don’t really think doctors understand that getting you bladder and rectum blasted with x-rays is eventually treatable or NOT. Frustrated in PR. Thanks for the input my friend .. god bless