← Return to Occipital Neuralgia Headache: Terrible pain lasting weeks, what helps?

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @sinyaale - welcome to Mayo Clinic Connect. The attacks you have sound painful.

Hoping that here you can meet others taking about occipital neuralgia headaches, such as @suszy39 @rnlorena @pierwell @laura1970.

What would you say are you future hopes for your condition and your treatment, sinyaale?

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Replies to "Hi @sinyaale - welcome to Mayo Clinic Connect. The attacks you have sound painful. Hoping that..."

@sinyaale Welcome this is a great place to bring your thoughts, suggestions, to fellow folks
who totally understand where you are out. Many good tips, I am flyiing with all of them.

Concerned ON Person

@lisalucier

Thank you for the warm welcome!

Well, i hope that my condition will be managable in such a way, that it doens´t interfere every aspect of my life; from waking up, laying down. Doing the dishes wrong, beeing to stressed or to lose. Beeing able to set goals for oneself again without having to redefine them every week/month because the condition burns the bridge to the goal. Beeing able to chase the "mind-version" of yourself - how you see and what you´d like to become.

Treatment? A surgery that actually works. Had my third one last week and the overall chances aren´t high that it will help. So relief. I hope for some relief for the mind.

@lisalucier Well good for you your Drs. are helping you. Some folks get no relief from these
strong Meds. and usually Drs. hesitate to give us anything. One buringing of C-2, C-3 C-4 no
improvment. trigger shorts every 4months. Some times I can go without a Headachs but then
A #10 Flair Up lasting 17-20 days. They are benning in three wks giving me Nerve Blocks? have
you ever had them or Botox? Some folks get real relief. Ice packs for the #10 Ice Pick pain
both sides of my head, over top and into my eyes. This sight has been so helpful , the maine reminding me there are others who "know exactly how awful this pain can be"
Welcome

Suszy fr Northern Calif.