Mesenteric Panniculitis and Sclerosing Mesenteritis: Let's connect

Only confirmed after ct scan this year which also confirmed tumor in colon stage 3 /now removed!..............my own review of ct scans going back 10 years confirms mesenteritis present but ignored by all!..i find this to be common occurrance!................6 months after surgery have a narrow small intestine /inflammation and chronic constipation!.........empty every thing out with stool softeners once a week!.......offered no alternative action!

@ 83 YEARS OF AGE.......RATHER FED UP!

As I was searching for answers after a cat scan on mesentric pinnicultis I stumbled on to a few comments here. I cannot find much information out here so I thought would at least find a friend and maybe support? My name is Aaron

@sqindy - welcome to Mayo Clinic Connect. You mentioned a CT scan related to mesenteric panniculitis.

Hoping you can meet @aksandralynn @fabiof @peterose @jlharsh and others here and get support and information from those who have experienced this condition.

In the meantime, hoping this Mayo Clinic information on this condition is useful for you:

- Sclerosing mesenteritis https://www.mayoclinic.org/diseases-conditions/sclerosing-mesenteritis/symptoms-causes/syc-20355087

Were you diagnosed with this condition, then? Were you given a treatment plan at this point?

Thank you lady Lisa. In Salt Lake Utah I am going to “granite peaks gastroenterology”.

I have been here before for other things however i expressed concern for pressure in my abdomen that hasn’t seemed right? The doctor said,”yeah if you have concerns, I can order a scan”.

After the scan it came back “misty inflammation” things like that. Was prescribed prednisone, but didn’t touch it. Then I heard the term “mesenteric panniculitis. (This was a week ago, and trying to determine if I need to plan for a future or a funeral).

Thank you, not much information out there?

Hello Aaron. I too was found to have misty mesenteric panniculitus from a CT scan when I had gone to the ER for days of stomach pain. Apparently, I've had it for quite a while as it was compared to a previous CT scan. Nobody told me I ever had it until recently. I took a round of prednisone and am now being seen at Mayo. I have a few more tests to go. I'm really not sure what the MP is or how that's going to be resolved, if it all, but the G.I. doctor here is actually looking at me for Crohn's. From everything I read MP can be difficult to treat.

re I'm really not sure what the MP ........many ct scans in older persons show MP
..IGNORED BY MANY DOCTORS /TREATED AS IMMFLAMATION BY OTHERS'

I really do not even understand any of this? I wasn’t having any pains or anything? I just noticed some pressure and it seemed odd? Very strange time in my life, but now I don’t know if things are getting worse FAST (within a few days), or just all in my head now? Not sure what to think? I talked to GI doctor today and they ordered another round of MRI and some other kind of test (one is nuclear, whatever that means, but I am only days into this new life). Not sure if it’s better than I think or a whole lot worse than I think?

I just turned 50 and don’t know if this is something that will end my life? Strange to not have any idea but maybe the rest of my life will be “more tests, more tests”? Aaron

@aksandralynn

Thank you for the explanation, we (us with the diagnosis) don’t have much to go with? Any small details that can help connect any clues or put a few more puzzle pieces together is all “more information than we previously had”. I’m going in for MRI’s and a nuclear test to try to figure out a little more?

I don’t feel like it’s a normal thing? I have had endoscopy’s, and colonoscopy’s and those things and nothing ever said leading to this kind of thing? After reading though I was diagnosed years ago with hoshimotos (autoimmune issue) and I guess that can trigger other autoimmune diseases IE: MP?

We are kind of in a small group on our own and limited information. Thank you for sharing, I’m only a few days into this crap so I have no idea even how to feel about it”just numb and tired from reading things about it looking for answers”. Thank you. Aaron

Thanks for the tag, @lisalucier.

Hi, @sqindy. I am so glad to see other members comment, I hope you are making progress in your learning quest!

I found an article you may be interested to review if you haven’t seen it already. I will provide a link here to recent (2024) information summarized by a few Internal Medicine and GI providers at Mayo Clinic. There is a section that is called a “practical guide for physicians” that may be useful to take and discuss with your doctor.
- Sclerosing Mesenteritis: A Concise Clinical Review for Clinicians https://www.mayoclinicproceedings.org/article/S0025-6196(24)00083-1/fulltext

A couple thoughts I have:
1. Stay active. The more consistent you are at moving, the better your body will function. Avoid feeling like the tin man from the Wizard of Oz, and help your body function at it’s best.
2. Bring your questions to Mayo Clinic. You can follow this link to make an appointment: http://mayocl.in/1mtmR63

I am curious, what are your symptoms currently, and how are they affecting your day to day? What is your biggest concern at this point?