Connect← Return to New Medications for Drop Seizures?
Discussion
New Medications for Drop Seizures?
Epilepsy & Seizures | Last Active: Jan 20 1:31am | Replies (8)Comment receiving replies
Good morning @laura1961,
I'm so sorry about the trauma that led to your epilepsy. I hope you're in a safer place now.
Twenty years is a long journey, and I can understand your frustration with medications that didn't work. Finding the right medication and dosage can be such a struggle and demands so much resilience from us.
The good news is that several newer medications have been approved since 2012 that might be worth exploring – Xcopri (cenobamate), Briviact (brivaracetam), Epidiolex (CBD), and Fycompa (perampanel), among others.
You mentioned Keppra and Epilim – have you tried other medications besides these two? What kind of doctor has been treating you – a general neurologist or an epileptologist? Have doctors shared with you what type of epilepsy you have?
I hope you'll soon find a treatment that helps you better control your seizures. Crossing my fingers for you!
Chris
Replies to "Good morning @laura1961, I'm so sorry about the trauma that led to your epilepsy. I hope..."
Connect
@santosha Hi Chris I have had a bit of a look at the new drugs but all seem to have s/e like all the drugs for seizures. I had a good read about cenobamate Xcopri but they only tested the drug on a few hundred people over a year I think it was. It did not seem long to me, so have tryed to see what other meds there are. The Epidilex says it is only really used as an add on drug like many of the drugs. Dr Omar Danoun says if the seizures dont stop after trying 2 of the drugs there is not much hope any other drugs will help. That was the case with me after trying various drugs for about 8 or 9 years until eventually I decided to stop. Especially after some had made the seizures worse. Do any people on this site contact off line. May be via email? Sometimes it can be easier to send info if needed. I read you other message too