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Did anyone stop BCG treatments after severe spasms and urination?
Bladder Cancer | Last Active: Jan 18 5:37pm | Replies (9)Comment receiving replies
@sileeno123 thanks for your message. I did speak to the PA at my urologist office at my last BCG treatment last Thursday She said it sounds like I have polymyalgia rheumatica (PMR) and said she’s never heard of BCG causing that. It is an autoimmune disease. With the BCG treatments revving up my immune system I am doubtful it’s just a coincidence. I see my PCP on Wednesday and plan to talk about this with him and ask for a referral to a rheumatologist.
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@marykayk
There was aa post on another BC forum that sounded very similar to your situation. Someone on there did mention that BCG can cause arthritis so I looked up the name they called it. Here is the info I found:
"BCG (Bacillus Calmette-Guérin) treatment, especially for bladder cancer, can cause arthritis, most commonly as a form of reactive arthritis (ReA), a sterile inflammatory joint condition triggered by the immune response to the BCG. While usually a rare but recognized side effect, it's a systemic autoimmune reaction where the immune system, activated to fight cancer, can also attack joint tissues, leading to pain, swelling (often in knees, ankles, wrists)."