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Anyone have any ideas on what this might be or potential solutions?
Autoimmune Diseases | Last Active: Jan 12 9:27am | Replies (32)Comment receiving replies
@rocksology
Sounds like me. Doctors don’t care and can’t figure out if I have RA/PMR/Seroneg. I had the mildest hints of arthritis which were never an issue until 19 months ago I took the first of two shingle shots. Yup, shot me into pure agony with bones deteriorating to the point of a left total shoulder replacement 2 months ago. I will need the right shoulder replaced asap. I did not “age” into this. I am in flare all the time. 19 months now. Pain level a 14. No joke.
Questions: with your seronegative status, what medication are you on? Was your seronegative detected by a certain blood test? I have never had tests if HS-CRP or IL-6.
Replies to "@rocksology Sounds like me. Doctors don’t care and can’t figure out if I have RA/PMR/Seroneg. I..."
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@susanlf
I've been blown off by PCP's, specialists, rheumy's, everyone I've seen for the last 19 years. It's led to cervical spine surgery, 3 back surgeries, a spontaneously torn long bicep muscle and 4 torn rotator cuff surgeries (I take credit for one of those! Fell off a stool straight armed!) Three were spontaneous tears. I couldn't groom my horses for the last 10 years because I couldn't grip a brush or raise my arms over their backs.
All my bloodtests were clean for RA factors and x-rays showed nothing at all. Finally, my part time Rheumy suggested an MRI on my right hand that looks like a claw. It came back definitively RA. If my hand hadn't flared into a claw after using my cane for a weekend, I would never have been diagnosed. I looked back on years of medical records and I've had CT's and x-rays but they showed nothing. The MRI did the trick.
I start back on prednisone 5mg tomorrow, and Leflunomide 10mg. Have to have bloodtests in 7 days and every 30 days after that. I'm reluctant with the pred, it screwed my body something horrible. But, that is the ONLY pain relief she can give me.
Terri