@alicia04101940 no doc seems to give a hoot cuz there are so few cases of LC.

@alicia04101940 join the Club
“ scratching head questioning” Club

@alicia04101940 I have had LC for two years and have read comments from others who have had it for 5+ years. There is just no way to tell you what to expect because the situation seems to change almost daily. The best I can figure is that LC attacks different parts or systems or glands within the body. The symptoms can show up right away....or they may not show up for months or even years. It's almost like a time-released attack on the body.

I'm 2 years in and started losing my hair about 6 months ago. Determined research turned up a shampoo that has stopped that. Three weeks ago, I noticed that my toes ache and then go numb when I lay down at night. No answers to that yet. God only knows what will show up next for me to deal with.

The thing to keep in mind is not to tackle ALL of the symptoms at once, but to tackle one at a time. Otherwise, you will become overwhelmed and discouraged. Find forums like this one where you can talk to others who are suffering as you are. Share symptoms, solutions or just shed a tear when you need to. You are not alone and we must work together to get through this physically and emotionally. You can find helpful sites through Youtube and Rumble as well. Just don't give up! ❤ 🙏