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Profile picture for GISUE @slangston

I did have SNS about a year and a half ago at Mayo Rochester through the colorectal surgery department. I was very happy with the surgeon that placed it and the care I received before and after. I had colonic inertia and had recently developed fecal incontinence without any warning occurring maybe once a week or less, but with no notice. I was offered the trial though CR Surgery which was done for constipation and fecal incontinence, It did help the fecal incontinencei buy not the colonic inertia. Because of the severe constipation, I have a loop ileostomy. I also had urinary retention which it helped completely, so we left the SNS in. I would definitely try it from my experience. Personally, I think I would prefer CR surgery to perform it (but I am a retired SIIC nurse).. . I'm not sure if GI does it at Mayo. I live in Florida and I still would still fly to Rochester! Ive been to JH, but prefer Mayo at least as far as clinics go,

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Replies to "I did have SNS about a year and a half ago at Mayo Rochester through the..."

@slangston Thank you for your thoughts & experience with this. It was brought up to me, then I had a virtual appt with a new Dr at Mayo and she thought I should pelvic floor therapy first and if it doesn't seem like it will work, then meet with a colorectal surgeon and possibly end up going back to an ileostomy bag. I would really like to avoid that, but I have had the nightime incontinence for over 2 years now, and sometimes 2-4 times per night. That is something I don't want to live with for the rest of my life, I am 65. They tell me my sphincter muscles are weak due to crohns or whatever. What I don't understand why it started so randomly. I sleep pretty hard when I sleep, so I just don't wake up, and waking up 2-4 or 5 times per night, I always feel fatigued. Hope you are doing well, and again thank you.