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Is it PMR?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 21 2:01pm | Replies (21)

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Thank you for your words, I rarely feel as though I belong in groups. I appreciate you.
My Rheumy lives in Phoenix, I’m in Central Oregon. She is retired and is only here every 4 months. The other traveling doctor is here when she isn’t. He triggered my medical PTSD and I refuse to see him again as he messed with my head for weeks after my appointment with him.
The “good doc” is starting me on leflunomide and is putting me back on 5 mg prednisone. I have blood tests in seven days and every 30 days after that until she gets back. She told me the other jerk has to follow me while she’s gone, but I won’t go see him.
Meanwhile, I can’t take NSAID’s for pain, only a fever reducer - Tylenol. Nothing short of 20mg prednisone has helped the pain in the past. Maybe cortisone shots in my hands, shoulders and hips will help?
Terri

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Replies to "Thank you for your words, I rarely feel as though I belong in groups. I appreciate..."

"He triggered my medical PTSD and I refuse to see him again as he messed with my head for weeks after my appointment with him."
Mine too, a grouchy old narcissistic rheum who wrote, and hid, a very disparaging note about me. Make sure you request medical records and consult note!
Now I'm making them legally amend my records which included the note I wasnt allowed to see. They are legally required to respond in 60 days by attaching my amendment to the original unprofessional note. He could be accused of "Information blocking" ( I wasnt aware of the note for 9 months while its embedded in my Medicare records), Patient Abandonment" refused to diagnose or treat me without referral to someone else,
There are consequences if they do not act in 60 days.