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Long COVID providers/specialists?
Post-COVID Recovery & COVID-19 | Last Active: 2 days ago | Replies (70)Comment receiving replies
I am so sorry you were denied. Did you receive a reason for your denial?
I, too, was denied when my physician (neurologist) referred me to the Long COVID clinic at my closest teaching hospital that has a Long Covid Clinic, Oregon Health Sciences University. The reason I was denied was instructive: I did not send in a referral from a physician who was a member of the OHSU faculty. They have so many referrals that they only take patients who are already under the care of a physician who is on the OHSU faculty, i.e., I would have to be a patient of OHSU in another department and have been referred by another OHSU physician. No, I live in another city and my referring physician was not on the faculty of OHSU, and OHSU is 120 miles away. I'm not driving 120 miles for each appointment in order to be seen by an OSHU faculty member who could refer me to their Long-COVID Clinic.
Your denial may have nothing to do with your case. Long-COVID clinics fill up so fast, they have very strict guidelines on who they accept. Did they give you a reason for their denial?
Again, I'm so sorry you have been affected so severely by Long-COVID. You may still find gradual recovery. My best to you.
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@joanland It was a Neurology referral, not for Long Covid.
The denial said they are unable to offer me an appt in the Neurology Department because they have more appt requests than they are able to accommodate. Therefore, appt requests are prioritized based on the likelihood that Mayo Clinic can provide additional tests or treatment options that are beneficial or significately different from evaluations that I have already received.
My Neurologist put referral in for Neurology to look at Orthostasis and Brain Fog. He put on referral "Multiple Autonomic Complaints (POTS, Slowed Gastric Emptying, Abnormal Body Temperature Regulation) Following COVID-19, Eval For Possible Dysautonomia Versus Functional Neurologic Disorder".
I have not had ANY autonomic or neurological testing other than a basic Neurology office visit anywhere. My neuro said there is no testing facility nearby since I have multi-system conditions. I have no options without this testing. I don't need them to treat it, just test me so my Neurologist can decide what to do next. Without any treatment, I will be left bedbound. No testing = No treatment. It is so unfair. My life is over. I am a prisoner in my own body. I will just have to somehow figure out a way to accept this.