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Long COVID providers/specialists?

Post-COVID Recovery & COVID-19 | Last Active: 2 days ago | Replies (70)

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Profile picture for beebee000 @beebee000

@ksblonde I too was just denied by Mayo in Rochester, my denial was by phone last Thursday, the 8th.. not by letter, I too was referred by my primary physician...I got COVID from someone on a plane or airport Dec. 14, 2019 and was soooo sick, I went to a doctor and she tested me for all the usual viruses and they came back negative then told me " you do have a virus and we don't know what this is" those where her exact words, I'll never forget it and I haven't been the same since, I can hardly get through a day, pain everyday, along with other symptoms, my primary as well as other specialists i have been to have tried everything ..Mayo was my one hope, they have better tests and and can test for things that can't be done here, it's why my primary referred me to Mayo..I know there is no cure for this but I wanted to find out what damage is being done to my organs..my body...what are we supposed to do other than be another one that this virus has killed off, I too was great before covid..

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Replies to "@ksblonde I too was just denied by Mayo in Rochester, my denial was by phone last..."

@beebee000 the denial is so discouraging. I can relate. I'm going to see if another provider will refer me and try again. However, hearing these stories makes me feel like it's unlikely they will help...
Praying you find healing as well!