@joy75
You're more than welcome and you worry about you, not us. You have enough on your plate.

I used to suffer Cluster Headache for 20 years and I'd never even met anyone similar that could understand what I was going through. I still get them but nowhere near as frequent.

I joined a start-up support forum around 2005. It was such a great comfort to speak to other people from around the world and compare experiences, treatments or just even have a laugh together. It's since developed into an full blown international awareness organisation.

* Getting the right doctor IS half the battle.

I live in Scotland and over the years the pressure on the NHS means we no longer have a family doctor at our local clinic. Every time I attend it's somebody different.
I've had the odd good one and some very, very bad ones that won't listen at all even to the point of being rude that just brush you off to an infuriating degree.

Try to see somebody else if you can as it doesn't seem your doc is taking you seriously and is an obstical to you. I've been there and just got lucky.
Don't give up, keep hammering away at them and you may get your way, if anything just for them to shut you up. Better still get somebody else until you find a decent one. Even formally complain.

Why should you live a crappy lifestyle in needless agony because of them? You having paid into a healthcare system your whole life then be fobbed off when you're desperate for help. It's ridiculous.

Hang in there and best wishes.