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Struggling with Tymlos medicine
Osteoporosis & Bone Health | Last Active: Apr 13 12:19pm | Replies (140)Comment receiving replies
Thank you for this info.
I am so confused about what to do after Tymlos. (one an endocrinologist , one a rheumatologist) Both these doctors who I got opinions from don't seem to be sure what to do either. They don't seem confident about recommending any of the drugs . The only thing they agreed on was for me to start with Tymlos. I am 65 years old with bad dexa scores so I know I have to be on something after Tymlos. I have had no bone density gains yet. The endocrinologist claims I still could see gains in the second year. We will see. Please let me know what your Florida dr recommends for you . I'd be curious. Thanks!
Replies to "Thank you for this info. I am so confused about what to do after Tymlos. (one..."
The doctor never ordered CTX or P1NP testing for me. They only checked my thyroid and other basic bloodwork before starting me on Tymlos.
I have been on Tymlos now for 16 months. Did a dexa at 12 months which showed zero density gains in spine or hip. Oddly, my arm bone did improve though .
FYI-- I was on HRT (natural estradiol gel and pill form of progesterone) for 5 years after menopause. Stopped HRT when I started Tymlos at age 64. Wondering if I had stayed on hormones longer and simply added Tymlos if I would've seen a bump in bone density. --but I am 65 and my gyno took me off HRT just because he thought 5 years was enough. Again, an uncertain topic with doctors these days!
@2024tymloshelp after I finish my TYMLOS I go back to the Reclast. I know that the doctors if they don’t see a result with one medicine like the TYMLOS they can switch you to another one. And if they don’t know what to do, I’d suggest getting a different Doctor Who does.
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@2024tymloshelp I am curious in case I missed it, but how long have you been on Tymlos? And did the doctor who stated you on it get your baseline CTX and P1NP numbers? Those are very telling especially fairly early on.