Weakness in legs: Is this part of neuropathy?

Posted by judee1948 @judee1948, Jan 3 12:29pm

I have had idiopathic neuropathy for 16 years. I have just now started having a weakness in my lower legs (below knees). They feel like they are not going to support me. Is this part of neuropathy or is it something else?

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Does anyone with neuropathy in feet and spongy feet encounter sacral and pelvic pain due from standing or walking?

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Has anyone tried the red light therapy? I have peripheral neuropathy. I have the spine stimulators they worked great for a year now not so much. I’ve had another fusion L4L3 I have been dealing with this for 35 years now after falling on ice. My balance is getting worse I keep walking hoping it will keep me out of a wheelchair.

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Profile picture for kekimmel @kekimmel

Has anyone tried the red light therapy? I have peripheral neuropathy. I have the spine stimulators they worked great for a year now not so much. I’ve had another fusion L4L3 I have been dealing with this for 35 years now after falling on ice. My balance is getting worse I keep walking hoping it will keep me out of a wheelchair.

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Welcome @kekimmel, Quite a few members have tried red light therapy and I think it's a mixed review - helpful for some, not so helpful for others. Here's a link listing the different discussions and comments from members on using red light therapy for neuropathy: https://connect.mayoclinic.org/search/.

I'm glad to hear that you keep walking. I just wished I was able to walk more but I'm still thankful that I can walk even though not very fast or well. The Foundation for Peripheral Neuropathy has a list of complementary and alternative treatments for neuropathy if you haven't already seen it - https://www.foundationforpn.org/treatments/.

Have you looked into other alternative treatments other than red light therapy?

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Profile picture for John, Volunteer Mentor @johnbishop

Welcome @kekimmel, Quite a few members have tried red light therapy and I think it's a mixed review - helpful for some, not so helpful for others. Here's a link listing the different discussions and comments from members on using red light therapy for neuropathy: https://connect.mayoclinic.org/search/.

I'm glad to hear that you keep walking. I just wished I was able to walk more but I'm still thankful that I can walk even though not very fast or well. The Foundation for Peripheral Neuropathy has a list of complementary and alternative treatments for neuropathy if you haven't already seen it - https://www.foundationforpn.org/treatments/.

Have you looked into other alternative treatments other than red light therapy?

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@johnbishop
I have tried a lot of different things for neuropathy. I have taken the drugs which I don’t like. I prefer no drugs the side effects are just as bad as the neuropathy. I’ve had 8 surgeries and will not do any more of them it takes me to long now to recover. Have the spine stimulators. They worked for a year. Now they think that it’s over stimulating me they have adjusted it but still not helping as well as it did at first. I do therapy in therapy right now to try and get some strength back in my legs after surgery. I read that magnesium chloride foot baths can help so started doing that 3 times a week. I also found Vitality frankincense oil balm helps a lot at night rubbing it in my feet a calf. I can sleep through the night for now but my experiences with neuropathy I find something that works and then later it doesn’t anymore so when I see other avenues I try I do how ever never believe that they can cure this. Maybe help me manage my pain but don’t believe there’s a cure. So sad

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