@michaelalexander

Having been on Eliquis for a Saddle Pulmonary Embolism (which was removed,}
but still had clots in my arm and left leg) and now off for four months I was told the reactions would stop after three or four days. They got worse and especially affected my joints with pain I'd rate as a 10. It felt like I'd lost all muscle or soft tissue in my joints and as if my feet were wooden, It was worse than when I was on it. The good news is the pain has immensely diminished. After sitting I have pain for a bit, but then it is gone. I don't do well on surfaces like grass or thick rugs, somehow my feet bottoms feel spongy, and think part of it is feeling as if I cannot really depend on my body to behave. I found all reactions were sudden: an hour before I could get in and out of a car. Suddenly could not lift my leg and had a few days of having to back up bottom first to get in the vehicle, then suddenly, after a few days, I could again sit. I still have digestion problems, vertigo is now rare. Eliquis seems to affect soft tissue, while on it almost immediately one side of my teeth shifted. I am able to feel the area above my soft palate with my tongue and until I tried to describe to you what area went from ridged to smooth I didn't know, it is the palatine rugae (?) ridges that evidently help with swallowing, It makes sense to me, if a medication can remove a clot, it certainly effects other tissue with part of the same makeup. For me I'm still celebrating being alive, but feel it is really helpful to understand some of the consequences. And most helpful to know that with time they will go away. At least at this point they are. I'm seeing an integrative PT (just started) and staying active. It seems the more I active (if it's just cleaning cupboards) the better I feel. Hope it happens to you soon. Do talk to your doctor to see if he/she can suggest anything else.

@michaelalexander
I experienced repeated nausea, fever, weight loss, shakes and hideous joint pain! I went to 2 Urgent cares & 2 ERs when I hardly could get out of bed. They would throw more pills at me. I finally took myself off of Eliquest after losing 13 lbs. in one month! I have returned to near normal except for swelling in my right knee that I didnt have previously! My CRP was at 85, while less than 5 is normal so I wonder if its done permanently damage to my knee! You know what you feel like, while doctors are trained to add more drugs rather than go after root causes!

@michaelalexander
Hi, i’ve been going back and re-reading messages about Eliquis wondering how you made out are you still on it or were you switched to another blood thinner?
After my heart attack, I was taking Eliquis for 15 months and month after starting it I noticed my legs were stiff in. It was hard to walk since then they’ve been getting worse. I had x-rays done and was told I have arthritis in my knees, but my issues in my legs are more than just arthritis in the knees. I find it very hard to walk around and I feel the same way. It just keeps up. I will be in a wheelchair but a few months ago I told my cardiologist I wanted to get off Eliquis. I mentioned to her about the side effects with my weakness and stiffness in my legs, but she denied Eliquis had any side effects like that so she put me on Warafin.. well, that was just as bad. I was on it for three weeks and of course I had to go twice a week to get blood work done so they could regulate the dosage but after three weeks on it I also had stomach issues most every day I would feel nausea and I had hair loss. I told my doctor I wanted to go back on Eliquis. I really didn’t know of any other option so I’ve been back on it now for almost a month and it seems like my legs are worse. I
Know people that had heart attack or bypasses and the only thing they take for their heart is a baby aspirin. I really don’t understand why I have to stay on this blood thinner. I thought it would only be for a year.