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Does anyone have a solution to help manage Reclast side effects?
Osteoporosis & Bone Health | Last Active: 1 day ago | Replies (707)Comment receiving replies
@dannyandebbie yeah I agree. Was your endo from mayo or where. Mine didnt tell me anything about any of drugs just saud terip then or evenity. Sude effects and all I learned had to Google it. He didnt answer half my questions and I told him specifically before deciding I didnt want to be stopped from being able to do teripartide and he exactly let that happen didnt tell me i would not be able to get anyone to give me terip after evenity if I was having fusion didnt want to be without none builder then I was just so stressed bout fusion had to have I didnt think about that when started evenity that id be without bone builder then what do I do. He did not warn me about that or that terip was better in fusions because they take 24 months can to fuse with my own goid mineralization bone : not the old bone just turned over and basically recycled with having to do bisphos pillor reckast iv poison or brittle bone prolia after evenity. Told me nothing. I did not even have a face to face appointment just portal use and initial. Consult. Had to google everything I learned he didnt want to answer my many questions thru portal said to many etc and they had to drop me if I didnt keep to couple questions.
Replies to "@dannyandebbie yeah I agree. Was your endo from mayo or where. Mine didnt tell me anything..."
@findtheanswersdn my endocrinologist is in Burlington Vermont. He never mentioned anything about the side effects and does not believe that the Reclast caused my shoulder, left leg pain that started the day after infusion, along with nausea and groin burning. The later two have got some better!
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@findtheanswersdn my endro is local here in Vermont. Of course there is always the possibility of some kind of side effects! The side effects I am experiencing he says are not from the infusion, sends me to Rheumatology, who sends me to Neurologist, who wants me to go to an orthopedic and the list goes on! I started on this merry-go- round and as doing so, I thought long and hard; “ This needs to stop” and the only person that can do that is me! It has been 19 months since my first and last infusion! I go bi-weekly to physical therapy and I am not going to be tossed around any longer. Prior to the infusion I suffered from Ankolosing Spondylitis and pain was manageable. With this infusion I don’t know what to expect from one day to the next. With that being said, it is getting a little bit better or I am learning to tolerate the level of pain and I do not need more. Good luck to you! I do feel the FDA should pull this drug off the market without further research!